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If I choose to take no meds. What is the worst that can happen?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 22 10:15am | Replies (23)Comment receiving replies
Hi,
I went on the PMR webinar a few night ago. It was a waste of time for me. This was more geared (in my opinion) to professionals as were the questions. I did not hear one question from a PMR sufferer answered. Honestly, I get more information and support from this Mayo forum. As patients, we are more empowered in our support for each other. I’ve also asked the same question. Am I doing more harm to myself by not caving into steroids and steroid sparing drugs (they all have their side effects). Each of us must consider and weight out the risk/benefit with the support of the medical team we trust (or in some cases, there is no trust). My inflammatory biomarkers are all fine but I am still symptomatic with body aches on a daily basis. Nothing however that keeps me from managing my usual activities, but for those of you who are affected, one must choose for themselves the best course of action. Keep the questions coming, the answers are out there albeit differently for each of us.
Warmly,
Patti
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No one wants to take prednisone. I fought it until I couldn't get out of bed any longer. Then I caved. It was better than being crippled
Now, like you, Patti: My inflammatory biomarkers are all fine but I am still symptomatic with body aches on a daily basis.
I stick to an anti-inflammatory diet. I've never eaten poorly. I exercise, what some would call excessively but what is lightening up for me, 6-9 miles of walking/running a day, lifting 4-5 times a week, babysitting a 21-month old 3 days a week.
My biggest concern is the fatigue has begun to set in. I've noticed it on occasion. It's a different type of tiredness.
Frightening and a total pain in the butt. I find myself being jeolous of people with normal lives. No a good thing to do. I ry to coundt my blessins, but there is this entire high highs and low lows thing going on that someone else mentioned.