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← Return to Starting BIG 3 tonight ….
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MAC & Bronchiectasis | Last Active: 4 days ago | Replies (34)
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Ah, I have MAI as well. No Big 3 yet (fingers crossed). I don't know my colony count since the lab at the center I go to does not have that ability. It is assumed it is a lower amount since I don't have a positive smear. From your post you sound as if you are a busy body like me however, I don't enjoy the nebbing sessions because it takes so long! 🙂 How long do airway clearance sessions take for you?
Replies to "Ah, I have MAI as well. No Big 3 yet (fingers crossed). I don't know my..."
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In the AM, my sunrise yoga
inhaled Amikacin, and 8 miles run work up any mucus. "Killing 3 birds with 1 stone" is such a timesaver! In the PM, I am blessed with a husband who cup claps my upper back to loosen mucus. I'm an expert now at huff-cough, so I seldom feel like I'm overloaded with mucus. I'm also very careful about not running outside in poor air quality from wildfires.
There are several labs in the USA that can give your doctor more information about counts, etc. if you or they are interested in getting down to the nitty-gritty of knocking MAI down. I can't believe how much better I'm feeling after just 6 months of treatment. Though I thought I had "virtually no
symptoms", now that I'm on the Big 4, I'm feeling like a 20 yo runner again, and going to get back to half marathon racing! In my particular, these 4 meds and my lifestyle choices have made me a new 64 yo!