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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: Nov 12 9:08am | Replies (7520)Comment receiving replies
I have a spinal cord injury from long ago. I’m what’s called a “walking quadriplegic “. I had PT three times over two years. It was very frustrating as I knew what they were doing wasn’t getting at what was wrong (I work in healthcare). Now I go to PT at a dedicated spinal cord injury center. Yeah, it’s annoying to drive 45 minutes each way twice a week simply for PT but it’s sooo much better.
I don’t know if there are specialty PT centers for neuropathy, but especially if you live near a city, there just may be one. Start by asking your neurologist. Google it. Try neuropathy associations. Use all the resources at your disposal. Maybe someone here knows something. I suspect specialty PT would serve you better.
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The neuropathy is not a problem for me. I have a mild case--just some numbness and a little tingling. Cannot call it pain. I went to PT to build up muscles that had wasted due to celiac disease. The first PT place I went to put ankle weights on me- The PT was too aggressive and my spine and glutes were too weak and I ended up waking up one morning with lower back pain. The second place I went to was also overly aggressive--30 reps of this and that and reminders that I had degenerative disease. Not supportive in the least.So I would be interested in a spinal center PT that can actually help me. I am going to get acupuncture at NYU Langone's spine center. Today I did one hour of walking at my local reservoir--good to be out in nature and listen to honking geese. I do not drive. I am grateful that I can walk. I am careful not to do any heavy lifting and I try to eat and sleep well. I am sorry for your spinal cord injury. And, it is good that you have healthcare knowledge. In these times we need to be our own advocates. As for me, I am angry that I have to deal with this and believe that perhaps these PT establishments are not well-regulated. Still, I need to find some solution to get on with things--my dog needs me.