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Consider finding this website as a supportive positive step in your journey. I had a calcified meningioma “incidentally” found on a CT done because of a concussion. I consulted with a neurologist and she advised the wait and watch approach - 6 month interval checks with a CT. Everything she spoke about was consistent with the published data I had found on line and the information that Mayo sent me. (Highly suggest contacting them for this info. Phenomenal literature.) I started having balance, visual, and hearing issues following my first CT check. The neuro sent me for MRI w/w/o contrast . Found a second meningioma that was too small to pick up on a CT. The first meningioma had not changed (as expected). We discussed the medications I was on and theorized that the change in the level of Mounjaro may have been an accounting factor to these new symptoms. I contacted my endocrinologist and we dropped back to the prior dose. I got to thinking about the Prozac I had been on for 25+ years and researched it. WOW! All of the symptoms I was having for years were showing up in the literature. I spoke to my primary and told her I wanted to go off of the Prozac. I have been off of it for several months and have regained my physical and emotional health including the reduction in my feelings of paranoia and aversion to social situations. I have digressed….. My lessons learned: 1. Get the literature packet from the Mayo Clinic (it’s huge and weighs a ton.) 2. Take a deep calming breath and develop a plan for living with your condition. 3. Find a neurologist that you trust (your instincts will tell you). Take someone with you into your neurology appointments (they need to be able to hear and ask questions that you may forget to ask or have not thought about, they can be your ancillary information repository for questions you have that were covered during your appointment. 4. Neurologists are the stepping stone to the neurosurgeon/surgery and are the post long term care following surgery. 5. Dig deep into the literature concerning any medications and their interactions, that you are taking. (Consult a pharmacist if they are super complex - Dr’s are not always fully aware of pharmaceuticals and their interactions.) 6. It is ok to let people support you - everyone has a different way expressing it. Best regards and positive thoughts, G

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Replies to "Consider finding this website as a supportive positive step in your journey. I had a calcified..."

great advice. Thank you

@gjcremers -- thank you for your share. So much compassion for you. Going through similar. Can you say which Mayo informational packet specifically you're referring to? How do we get it, is it on a website or who do we ask? thank you. Wishing you all the best in your healing journey.