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Profile picture for rkklinger @rkklinger

Thank you for the link on eating. It was interesting. The surgery in 1995 was for 1 tumor between the ilium and the bowel. 7 of the 11 lymph nodes removed were malignant. His 5HIAA was checked for 12 years and he decided not to check in yearly after that. He has lived a very normal life with no issues until a few years ago when he couldn't taste food. That started a couple of years before he had Covid so it wasn't related. With the amount of tumors throughout his body and skull, the cancer has obviously been metastizing for several years. We are meeting monthly with a Nutrition Oncologist at Mayo. Unfortunately, I haven't found any definite consistency with any certain foods. The pain just seems to pop up at different times during the month after injection. We go in for scans, etc on October 6. This is the first time since rediagnosis that he has gone 6 months so we are a little anxious. I really appreciate all of the information I'm seeing on Connect.

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Replies to "Thank you for the link on eating. It was interesting. The surgery in 1995 was for..."

@rkklinger

I'm glad to hear that you are meeting with a Nutrition Oncologist at Mayo, which must be helpful. Was it suggested that he eat small, more frequent meals? I would love to hear any suggestions mentioned by the Nutrition Oncologist.

I am glad that you found Connect and that the information here has helped you. I can understand you feeling anxious about the October 6 scan. We all have scan-anxiety.

I look forward to hearing from you as you have questions or need a listening ear.