Been awhile since I've been here, new nodule growth

When I had a my first lung cancer in 2014 they did a CT guided needle guided biopsy due to the location of my nodule. Perhaps you can ask.
You don’t sound comfortable with your doctors. If not you should definitely find new doctors,,, that’s ridiculous to wait that long for results,
Can you get your medical in a My Chart or something similar? I see all my test results,office visit notes and more as soon as they are released to the doctors.
Some people Don’t want to see and wait on the doctor to discuss.
Posting them to you is required by law now I believe but you can opt out if you.There should be a portal or my chart link through your doctor or hospital.
Where are you being treated?

@gig666 , Someone from the NETs group (https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/) may be better equip to answer your question about the difference in terminology. I did find this article, referring to a change in approach to naming the cancers. My non-clinical interpretation, I would think they are the same. You may want to check with your oncologist to be sure.
https://netrf.org/for-patients/newly-diagnosed/carcinoid-tumors-renamed-neuroendocrine-tumors/.

I am in Redding California not exactly a hotbed of science lol and I'm always skeptical; I went 7 years starting at 21 having doctors disregard my endless search for a diagnosis of symptoms that turned out to be a stage 3 Astrocytoma because nobody HEARS young cute newly clean & sober females 0_o. I got married and pregnant at 27 and luckily I was in Las Vegas and had culinary union insurance and got the BEST surgeon & a clinical drug trial for that and I'm a 29 year SURVIVOR ! I have every medical portal available even imaging, which is how I even found out about the initial CT results last year that led to right upper lobectomy and had to call and get on people's nerves to be heard then after I got "lucky " and a "new patient " appointment led to a lcsct and slew of tests from doctor who then moved away ( My angel ! I also have a friend who was an ICU& Oncology nurse then a nurse practitioner and now does Eastern Medicine who looks over things and advises me if I don't understand. When I hear from surgeon I am asking about needle biopsy but I'm seriously considering asking for referral to Stanford or Davis!

🙂 Thanks for your rsponses, I appreciate them but once again life got overwhelming and I haven't been checking in here.I had a wedge resection surgery in May on the left lower and it was stage 2 so I'm glad I got in, I got referred to Gandara at Davis in April and he'd recommended molecular testing on both after biopsy or surgery( i think that was the term) to compare what I now call Thing1 on the right and Thing 2 on the left but after Thing1 in 1/24 I'd landed at an Oncology office that after all this time just last month kind of "broke up " with me using the "it's not you ,it's us" method saying they are radiation oncology and I don't need radiation and they can't order that kind of testing so they were referring me back to Davis and that was a month ago and I'm just frustrated and overwhelmed. I'm feeling pretty good overall , my ribs started hurting with a poking feeling but I have read that is normal and it's only in the 5th month after surgery, I asked onc about odds etc and she said they'd cover it at next appt, but now I don't have one so I still have questions and like I told surgeon no matter how cute he is I would rather not just have him take pieces of my lungs out yearly until there is nothing left lol.

@silvergirl29, I'm glad your sense of humor is intact. 🙂 Being passed from specialty to specialty is difficult. Most of us don't see oncology early on in the process, and I sometimes question that approach. You should establish care with an oncologist, so I would continue to press Davis on an appointment. You still have questions to be answered, and they can help to manage any future scans or issues. Are you able to get an appointment by calling the office?

I got a call yesterday and he is calling today. I was just thinking that in '96 when I dealt with the Astrocytoma they saw me weekly at first then over the years after chemo stopped it stepped down to yearly at about year 8, but that was stage 3 and I got in on a drug trial. I of course lost my list of questions for him and now have to rewrite them 🙂 If I didn't have a sense of humor I'd never have made it this far 🙂 I inherited it from my mom , she got dx with stage4 nsclc the day I got home from surgery and we laughed about making a true life movie that would make steel magnolias pale in comparison ,we were going to be treatment buddies but it was found to be in her bones and she was gone by the time I was finishing radiation!

@silvergirl29 , I'm so sorry to hear about your mother. This disease can be brutal. I hope you have an appointment set up to get some of your questions answered.