Connect
← Return to Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Discussion
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: Sep 22 1:50pm | Replies (97)Comment receiving replies
Hello @rkklinger,
I so admire the attitude you and your husband have in the face of this long-term chronic condition he has experienced. I see that he has discomfort after meals. I want to suggest looking at another discussion on Connect, which might be helpful. Here is the title and the link:
--How Do I Eat After Digestive Tract Surgery
https://connect.mayoclinic.org/discussion/how-do-i-eat-after-digestive-tract-surgery/
Often, minor changes in the quality or quantity of food can make a difference in symptoms. There are members who have posted in this group who have a similar diagnosis to your husband's, and their suggestions might be helpful.
You say that he had surgery in 1995. was the surgery in the upper digestive tract? I look forward to hearing from you again.
Replies to "Hello @rkklinger, I so admire the attitude you and your husband have in the face of..."
Connect
Thank you for the link on eating. It was interesting. The surgery in 1995 was for 1 tumor between the ilium and the bowel. 7 of the 11 lymph nodes removed were malignant. His 5HIAA was checked for 12 years and he decided not to check in yearly after that. He has lived a very normal life with no issues until a few years ago when he couldn't taste food. That started a couple of years before he had Covid so it wasn't related. With the amount of tumors throughout his body and skull, the cancer has obviously been metastizing for several years. We are meeting monthly with a Nutrition Oncologist at Mayo. Unfortunately, I haven't found any definite consistency with any certain foods. The pain just seems to pop up at different times during the month after injection. We go in for scans, etc on October 6. This is the first time since rediagnosis that he has gone 6 months so we are a little anxious. I really appreciate all of the information I'm seeing on Connect.