My husband has NETS stage 4 with tumors throughout his skull and body. One tumor was removed in 1995. At that time there was nothing they could do. He was rediagnosed 28 years later 12/30/23. He is now on Lanriotide every 28 days. He experiences pain in his back near the right side about an hour after eating once in awhile. In July he only had 1 episode but had several in a row the beginning of August. He has been advised to take GasX when it happens and also needs to lie down on his right side to relieve the pain. Most times, it lasts 15-20 minutes but had an episode lasting an hour last week. He is 81 so it is often hard to tell if a symptom is due to age or cancer. Thankfully he doesn't experience the diarhea that so many of you on Connect experience. He golfs daily, does 120 pushups and rides a bike 30 minutes daily. We are thankful for each day and do our best to make the best of this difficult cancer.