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Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Neuroendocrine Tumors (NETs) | Last Active: Sep 22 1:50pm | Replies (97)
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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @vickihorseman

I'm sorry to hear of all of the "knots" you've experienced as a result of the injections. While you wait for a reply to your post. I was wondering, how long ago you began the injections? Have scans shown any decreases in the number or size of your tumors or have you had any symptom relief?

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Replies to "Hello @vickihorseman I'm sorry to hear of all of the "knots" you've experienced as a result..."
vickihorseman | @vickihorseman | Sep 21 6:44am

Hi there Teresa,
It’s been a little over a year that I’ve been on the shots. My first scan was after 6 months on meds and no tumor growth was detected. I have a bunch in my liver. Two that are in specific lobes and a bunch of little hanging out everywhere.

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vickihorseman | @vickihorseman | Sep 21 6:49am

Little over a year and definitely helps. The tumors are the same but did not grow.

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