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Melanoma & Skin Cancer support: Introduce yourself and connect
Melanoma & Skin Cancer | Last Active: 7 hours ago | Replies (143)Comment receiving replies
@davepurvis: it must have been terribly disappointing and difficult not only to suffer cardiac effects - requiring hospitalization - but then have the clinical trial cancelled for unknown reasons.
You sound very informed in your ability to make sound decisions in your care, part of that I sense is from the good solid confidence you have in your doctors- which is so important when treating for a condition such as metastatic melanoma. Have they discussed the possibility of advancing to perhaps combination immunotherapy in the future, or is that dependent on the results of your upcoming scans?
On behalf of others like me going through this, I can say I do appreciate your sharing your experience, thank you.
Replies to "@davepurvis: it must have been terribly disappointing and difficult not only to suffer cardiac effects -..."
@grammato3 Hi Susan, Yes, combination immuno’ is being discussed yet again but this time I’d need to fund the treatment ( was originally prescribed by medical team but cancelled by ‘the powers that be’ as I’m classified as immuno’ resistant).
The challenge right now is that I get small single tumours ( liver, brain and possibly lung) that can be treated with radiation. It seems I’m oligometastic! Right now liver tumour in remission, brain tumour likely same using gamma knife and small 3mm lesion in lung might be consequence of COVID. hurray now normal 50 bpm (resting) and medical team advising that we’ve just got to wait and see what the melanoma decides to do?
It’s a situation that’s both good and bad….good not too serious as yet and bad because of the unknowns.
Just gotta hang in and hope.
Dave
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@grammato3 and @davepurvis Thank you both for the informative posts! It makes my head spin to read what you all have gone through, having had simple melanoma myself, excised in 2008.
Ginger