Connect
← Return to Starting BIG 3 tonight ….
Discussion
MAC & Bronchiectasis | Last Active: 4 days ago | Replies (34)
Comment receiving replies
Thank you so much for your kind words . It is nice to hear that it is possible to tolerate. Gives me hope. so far so good. will take every day.. so I am loading up with Kefir and oats in hope of keeping the gut healthy. lets see. Good luck on your journey 🙂
Replies to "Thank you so much for your kind words . It is nice to hear that it..."
Connect
Hi there! On the daily same Big 3 doses as you, plus twice daily inhaled Amikacin. I wanted to let you know what my BE/MAC/MAI pharmacist from Mayo Clinic advised to get the most effective absorption of meds: NEVER take Rifampin with Azithromycin bc the Rifampin decreases Azithromycin absorption by over 50%!!! Macrolides are the #1 fighter against MAC, so you want to absorb the full dose. Also, INHALED Amikacin goes directly to the lungs, versus IV Amikacin, thereby decreasing chances of cruddy systemic side
effects.
I'm certainly not saying that your ID doc doesn't know what's best for you, but my Mayo ID doc and his pharmacist are adamant about making sure that all meds prescribed are most efficiently and maximally absorbed. It's why the pharmacist personally calls MAC patients to explain the schedule. I've updated my daily schedule if you're interested how I do it all without feeling like it's taking over my life. We are all different bodies with different physiological characteristics. Best wishes for testing negative sooner than later!