@panorman3: I hope your Oncologist has some experience with Neuroendocrine Carcinoid Cancer due to NET tumors need expert treatment at the most efficient time in tumor progression. I urge you to research NET disease and learn all you can. Through your biopsy/diagnosis you learn your KI67 %, Tumor Grade and the Stage of your disease. Many of our tumors are slow growing and symptoms are manageable. Ask if your tumors are “Functioning” or not, are “Well-differentiated” or not and the results of your 24hr Urine test. Ask for a 2nd Opinion from a specialist in your NET cancer field, they are the best dr to advise your treatments and manage your health.
Most of us receive Lanreotide shots every 28 days at your local Oncologist to control symptoms and may reduce tumor growth.
I hope this helps you on this unplanned, unexpected change in your health. The more comfortable you are knowing the details of your tumors, really helps you converse with your drs to make best treatment decisions. This is a rare disease - not similar to the other types of cancer!