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Anyone lost the ability to walk due to peripheral neuropathy?
Neuropathy | Last Active: Sep 22 11:43am | Replies (32)Comment receiving replies
I have idiopathic small fiber peripheral neuropathy since 2002 I can’t feel my feet have no balance and walking is unbearable.They have me on gabapentin which does hardly anything for pain numbness burning sleeping is difficult I have tried everything spent thousands and nothing helps. Just tried umbilical stem cell injections at cost of 16,000 $ to no avail doctor lied and I believed hoping it would help.i am exhausted with this disease and have no where to turn
Replies to "I have idiopathic small fiber peripheral neuropathy since 2002 I can’t feel my feet have no..."
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@771
Sorry to hear you are also suffering. Did you ever get MRIs of your cervical and lumbar spine to check for compressed nerves? Did you have a neurologist do an EMG/nerve conduction study of upper and lower limbs?
There really isn’t a cure for small fiber neuropathy and the best they can do is find the cause and treat that (like diabetes, vitamin deficiencies/toxicities, stopping alcohol/smoking since they are toxins to the body, reviewing medications to see if they are the cause, etc.). Chemotherapy can also cause neuropathy. Did you have extensive bloodwork to see if there was anything flagged as abnormal? I am assuming you did if your neuropathy was classified as idiopathic.
Have you tried taking alpha Lipoic acid, acetylene l carnitine and magnesium supplements? They do help reduce some of my symptoms. Seeing a dietitian/nutritionist can help review diet/supplements to suggest changes that may help and physical therapy to help improve blood circulation and modify exercise due to your pain.