I figure I would relate my own story regarding my experience with BFS. In Late July 2016, I just randomly started experiencing a strange pulsating dull ache in my right shoulder. I remember the day well. It was a Wednesday. It would pulse and then I'd get a stronger "zinger" of a pain and it would subside. This reoccurred many times throughout the day. The next day (Thursday), the pain in my shoulder was gone. But it had migrated to my left forearm. Same thing. Pulsing dull ache followed by a stronger zinger of the pain/discomfort. The next day (Friday), it had migrated again but it was in my right thigh. Rinse and repeat. The next day (Saturday), the pain had migrated to BOTH lower legs and feet. In addition to this perplexing migrating pain, I was also experiencing body-wide micro-twitching/spasms. Not large muscle bodies but tiny little spasms that felt like bubbles bubbling under my skin. I also felt pin pricking sensations all over my body. I joked and said there were little gnomes running around on my body with needles and poking me. The waves of pain went away but the spasms and pin prickling sensations remained.

In December 2016, I underwent testing for MS, ALS, etc. MRI was negative, EMG was negative, strength tests were all normal, etc. No doctor ever told me about BFS. They simply ruled out MS, ALS, etc. I continued to research and came across the "BFS" term. I read up on it and saw that it matched what I was experiencing. Since I had already received the "all clear" on the major neurological conditions, I self-diagnosed my BFS.

Here I am... nine years later. Still experiencing daily spasms, pin pricks, etc. I've gotten used to living with them. Thankfully my BFS does not interfere with sleep or any other functions. It's just a constant sensation on my body that I've acclimated to and learned to live with. A neurologist simply said, "Sometimes the human body just does weird things that we can't explain." I have found nothing to make it any better.

But lately, it's been REALLY hyperactive. No idea why. Reminds me of the time when it first started. I am scheduled to undergo another brain MRI on September 29th, 2025. I'm not worried about much but I just want to make sure things are still clear.

I just wanted to take a moment and share my experience with BFS. If you're also experiencing this condition, I know how annoying it can be. But you're not alone. But put your mind at ease. It's benign. Annoying... but harmless and you can live a full and normal life.