Connect
← Return to Melanoma & Skin Cancer support: Introduce yourself and connect
Discussion
Melanoma & Skin Cancer support: Introduce yourself and connect
Melanoma & Skin Cancer | Last Active: 7 hours ago | Replies (143)Comment receiving replies
Hi Susan,
No comment as yours is an excellent synopsis of my current state.
I have received excellent treatment and have full confidence in my medical team.
My only complaint is the ‘authority’ definition of immuno’ resistance which did in fact cancel treatment prescribed by my medical team.
To facilitate my need for systemic treatment I then participated in a major clinical trial but had cardio related events requiring hospitalization.
Eventually ( about the time of my cardio recovery) the trial was terminated for all global participants. (Reason unknown). I was subsequently offered other clinical trials but all Stage 2 and too risky in my humble opinion. This is when I opted for radiation and quality of life ( the double awareness model)
So very happy with medical team but funding and definition of immuno’ resistance needs better definitiov
Best Dave
(I hope this is helpful for others ‘in the same malignant melanoma boat’)
Replies to "Hi Susan, No comment as yours is an excellent synopsis of my current state. I have..."
Connect
@davepurvis: it must have been terribly disappointing and difficult not only to suffer cardiac effects - requiring hospitalization - but then have the clinical trial cancelled for unknown reasons.
You sound very informed in your ability to make sound decisions in your care, part of that I sense is from the good solid confidence you have in your doctors- which is so important when treating for a condition such as metastatic melanoma. Have they discussed the possibility of advancing to perhaps combination immunotherapy in the future, or is that dependent on the results of your upcoming scans?
On behalf of others like me going through this, I can say I do appreciate your sharing your experience, thank you.