Who has been on lupron for a long time, and/ or firmagon?

Both drugs work very similarly. While Firmagon is good for the very first shot, you should find no difference between that and a three month Lupron shot Orgovyx.

Zytiga gave me high blood pressure and four afib Events the last one letting me on the hospital for four days. I was on Lupron for a couple of years after and now on Orgovyx. I do not understand why he is reticent about moving to Lupron or Orgovyx.

I’ve been on ADT for nine years 6 1/2 on Lupron and 2 1/2 on Orgovyx. Neither of them ever caused me any heart issues.

Thanks! Were you stage 4 from the beginning?

While seeing the oncologist and pharmacist lady before the chemo today, my husband said he's not sure it's working because "he's doing extremely well" the pharmacist lady was quick to say it's working or he'd be dead by now!

I’m on Firmagon for a couple months now. I have no side effects. I feel absolutely fine. I do excersise everyday, and I have for many years.

My husband has been on it since maybe March and he's hesitant to switch....

No, I started out as stage two. I didn’t Become stage four until about six years ago when I became castrate resistant.

I have BRCA2 Which I didn’t find out about until about four years ago, got it from my mother.. That means my body can’t correct DNA error and since my father died of prostate cancer, it doubled the chance of my getting it plus the genetic problem. My brother didn’t have the genetic problem. He didn’t get it till he was 75, I got it at 62.

Aww sorry.
My husband is 55

I had RRP prostate removal in late 2016 at Johns Hopkins. By March 2017, PSA had risen to about 15. No indication of a CAT scan of where/how the cancer spread. Rather than salvage radiation, the oncologist recommended that I get a PSMA CT scan. I believe it was experimental at that time. The scan showed "innumerable, very small tumors throughout my lymph system". So I avoided salvage radiation, which would not have been helpful. I started on Eligard (same active ingredient as Lupron). That worked to lower my PSA for more than a year. The JH protocol involved an Eligard injection to lower PSA levels, then holding off until the quarterly PSA levels started to increase. Eventually, the Eligard alone lost its effectiveness. Moved to abiraterone/prednisone while continuing the Eligard. When PSA started to increased, tumors grew in size, and spread to bone as well as lymph, the oncologist put me into a research study call STEPUP (alternating enzalutamide and high dose testosterone depending on PSA response. Eligard continued. The study protocol lost its effectiveness this spring. I started Provicto in August and await the results of blood work next week, and the 2nd of 6 infusions in early October. Eligard continues. So, I've been on Eligard for over 8 years. My ED has been complete for that entire time. My blood pressure is low and is managed with medication and a substantial loss of weight. As with many aspects of prostate cancer, the experience, treatment, and course of the disease vary considerably by person. All the best to all of you on this journey.

My husband's PSA is still NOT undetectable, it's lower but not 0..... it started at almost 300 in February and he was put on monthly Firmagon then later added the Zytiga pills and now finished Chemo, it had lowered but I think the last few months were something like 4, then 2.8 then 1.6, then 0.8 and now 0.68... he's worried that it's not effective. PET scan is mid October, so we'll see.
The first PET scan showed it in prostate, pelvis, bones, hip, lymph nodes both low and high, and innumerable focci in lungs! I sure hope this next one will be better!

Firmagon crippled me for a couple days with extreme back pain if I tried to move. I was dumb enough to let him inject me twice tho I at least wore depends that night. I had Lupron depot for severl months after that and eventually was cancer free for several years. I started wit Lupron again and had no issues till I received the 6mo Lupron which worked great for 2 years but gave me a complete body rash, head to toe. I must be special.