← Return to 44yr PSA180 Gleason9 non-metastatic. Surgery or Treatment?

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Profile picture for jeff Marchi @jeffmarc

As you probably know, Gleason nine is quite aggressive. I do know at least one person who had surgery with a Gleason nine and his cancer didn’t come back for 30 years. I know other people That were able to go 20 years without recurrence.

Yes, ADT and radiation can work, but it depends on the other things found in your biopsy. Were any of these found extra capillary extensions< intraductal, Cribriform, seminal vesicle invasion or EPE?

They can mean it is even more aggressive and that surgery plus radiation might be your best choice. Either that or IMRT followed by brachytherapy. This is something your doctor will decide, along with you.

Did you have a PSMA PET scan? That really is required in order to find out if you have had spread to anywhere else. What was your PSA when you had the scan?

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Replies to "As you probably know, Gleason nine is quite aggressive. I do know at least one person..."

Thanks for responding. I’m very nervous and confused. Yes, I’m 64 years old and perfectly healthy. My path did have cCRIBRIform. Cell pattern. I just had a PSMAPET scan two days ago and it was clear. I really don’t wanna have to take the ADT medicine side effects and long-term things. Don’t sound good to me.

Honestly, sometimes PC behaves like some kind of parasite 🤢, you just can not get rid of it ! WHAT was hidden for 30 years and dormant ??? Why it activated after THIRTY years ! What cell can live for 30 years ? Only heart cells and neurons live as long as we are alive (do not get replaced) - unbelievable things indeed.

Jeff - are you still in contact with those 2 men ? It would be worthy to ask them what they think helped them to be in a remission for so long. 😎

It is really so mind boggling that there is no rhyme or reason to PC ! One can have 4+3 and get BCR in 5 years and one can be gleson 9 and have BCR in 30 years. It is like tossing a yazi - that is your chance - whatever falls it could be your chance of BCR no matter what you initially had 🤨🤷‍♀️