← Return to My neurologist has suggested my symptoms may indicate CIPD

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Profile picture for danawyn @danawyn

CIDP is difficult disease to diagnose. I suffered from tingling and burning sensations, as well as loss of reflexes and weakness in my arms and legs. An MRI ruled out MS and an EMG with a GREAT neurologist (after 3 neurologists said nothing was wrong with me) ended with a diagnosis of CIDP. I chose IvIG as a course of treatment but please discuss all options with your doctor if this is the diagnosis. You can also go to the GBS/CIDP Foundations website - they have some very helpful information. Stay positive if you can. Most of all, be gentle with yourself and help your family learn about the disease, Their support will be so important.
http://www.gbs-cidp.org

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Replies to "CIDP is difficult disease to diagnose. I suffered from tingling and burning sensations, as well as..."

Thanks for supplying the url for the gbs-cidp.org website. It is now pasted on my desktop.
I so appreciate your recommendation for me to take care of myself. Sometimes that is hard.
Best wishes to you as you navigate this strange land. I may be on my way to joining you.