← Return to Monitoring night seizures

Discussion
minajo avatar

Monitoring night seizures

Epilepsy & Seizures | Last Active: Sep 18 7:00pm | Replies (7)
Comment receiving replies
Profile picture for keeg1010 @keeg1010

Hi Lisa's mom,
I'm glad you have a neurologist on your side. One thing I mentioned here before is you can ask your neurologist to order an ambulatory EEG. This test is done over 24-72 hours and is done at home. It will record all seizure activity over that period of time, whereas a regular EEG is less than an hour long (typically) and not as accurate, in my opinion.
I am so sorry you and Lisa are going through this. It's very difficult as a parent when your kiddo is in a group home and you're at the mercy of the states guidelines. You are a wonderful advocate for Lisa. Always battle, never give up.
Kerry

Jump to this post

Replies to "Hi Lisa's mom, I'm glad you have a neurologist on your side. One thing I mentioned..."
minajo | @minajo | Sep 18 10:13am

Thank you I'm afraid Lisa can't do ambulatory eeg, she pulls hair clips out!
We did get a EEG in hospital only when she was really out of it, had drug induced encephalopathy, her 25 days post op was very hard, but least we got that done, now needs EKG as her pulse went to 44 in doctor's office this week( came back up after hydration) Even that will be challenging
After 49 days in hospital last year she doesn't do well for even office visits
This life of profound autism, epilepsy has been extremely hard for her, I don't say for me as I'm her mom, my love is endless ..

VIEW AND REPLY