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Was your endometrial cancer tested for mutations in the gene POLE?
Gynecologic Cancers | Last Active: Sep 18 4:11pm | Replies (45)Comment receiving replies
@dlgbb Thank you for sharing such happy news and for the photos. The painting is huge and the setting is lovely. What an elegant place for a wedding. How much crying did you do? I'd have been crying the moment the bride walked into the room.
When my brother and I were in Eastern Canada a few years ago I asked him if he'd ever visited Niagara Falls (he lives in California). When he said "no" I figured everyone has to visit Niagara Falls at least once, So off preferably from the Canadian side. So, off we went. We also visited Niagara-on-the-Lake. What fun to get there by bicycle and stop at vineyards along the way.
It's been six years(2019) since I was first diagnosed with endometrial cancer. I had a recurrence in 2021 and that's when I had radiation therapy. My next appointments will include CT with contrast of lungs, pelvic region and abdomen and a physical exam. Almost four years since the recurrence and NED all that time. For some time after the recurrence I was anxious and worried about another recurrence or a new primary cancer. Sure, it could happen but the worry isn't present anymore. Like you, I am making new and wonderful memories!
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@naturegirl5
Hi Helen,
I am so happy for you that you have had four years of NED. I hope that continues for you! I am glad that the worry gets less as time passes. I can’t say I have been horribly worried about a recurrence of this particular cancer (because of the POLe mutation), but I do worry about a new cancer. I was very relived to have a good colonoscopy last week. It seems like I can relax and just get on with it, but when so much testing happens, then my mind goes back onto “alert”. I have had several heart tests lately too, and have another one next week, and I am just ready for all of them to be done and to just be away from the doctors for awhile, even though they have all been absolutely fantastic.
I did cry when my husband and I walked our daughter down the aisle. I was just so relieved that we both made it to see the wedding. My husband had a heart attack last October, right while I was waiting for my initial hysteroscopy to see what was going on. Originally the kids had planned to get married in France, because they live in Germany (they are both opera singers). After everything broke loose with our health, they moved it back to Canada, specifically Toronto where they used to live. It was so magical to see the happiness on their faces. I couldn’t cry long, though, because the bride began to cry and didn’t have a tissue, so I gave her mine. After that, I had to keep it together! The ceremony was so happy and joyful, though, it was hard to cry. They were both just beaming. Their ceremony and reception involved a lot of music because most of their friends are professional musicians, and the bride and groom sang a duet to each other. It was so beautiful. Now they are back in Germany, and my husband and I are hoping to visit in the spring. Our health seems to be stable, and my next big goal is to plan a trip so that I can also bike in the Netherlands during tulip season. I think we have to try and make all of our bucket list items happen, even if health is good!