Connect
Discussion
Comment receiving replies
Replies to "I could not tolerate rifampin either I experienced throwing up violently and awful chills. I’m exhausted..."
MAC & Bronchiectasis | Last Active: Sep 21 8:28pm | Replies (41)
Comment receiving replies
I could not tolerate rifampin either I experienced throwing up violently and awful chills. I’m exhausted too and my family doesn’t understand it. I’m on 2 of the big 3 along with clofazamine. An experimental drug. I nebulize every day with albuterol and 7% saline to try and keep the airways open. Good luck to you I completely get it.
Replies to "I could not tolerate rifampin either I experienced throwing up violently and awful chills. I’m exhausted..."
Connect
@britchic and all ... Anyone whose doctor says "you shouldn't feel that way" when you are exhausted with NTM/MAC & heavy duty antibiotics needs a doctor who knows Bronchiectasis and MAC. If you are in the US, you can do a search here for "centers of excellence." It is a growing list.
If your family doesn't understand, would they be open to reading any of the excellent available resources? Do a search here for "ABC's of bronchiectasis " to find them. And get the rest you need!