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BVD and daily headache

Headache & Migraine | Last Active: Sep 19 2:19pm | Replies (4)

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @jdp3

I can understand your concern. You appear to have a lot of problems related to your vision. You seem to have a good medical team who are working with you. I'm sorry to hear that they cannot find any underlying cause for all of these vision-related problems.

While we wait for other members of Connect to respond to your post, here is some information I found about this disorder from the Cleveland Clinic website. Here is the link: https://my.clevelandclinic.org/health/diseases/binocular-vision-dysfunction-bvd

I would encourage you to read the article and see if this explanation explains the problems you are having. As I read the article, I see that there are numerous symptoms and causes.

Often, complex problems like this are best addressed at a research-oriented medical facility. Have you considered a second opinion at this type of health care institution? Mayo Clinic would be a good option for a second opinion (link to appointment information for any of Mayo's three locations, http://mayocl.in/1mtmR63). If an appointment at a Mayo facility is not possible, then a university medical school might be a good choice for a consultation. You will want to pick a medical institution that is known for treating vision problems.

Have you considered getting a second opinion, @jdp3?

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Replies to "Hello @jdp3 I can understand your concern. You appear to have a lot of problems related..."

Thank you. I read the article and it does align with my problem but the underlying cause is not clear nor is a treatment option . I ve tried to get in at local OHSU but it is nearly impossible to get in due to wait times and the need to be accepted as a patient by their selective process. I’d need a strong referral but not sure how to get one given the situation with multiple disconnected specialists.