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Bones, Joints & Muscles | Last Active: Jan 6 3:12pm | Replies (51)
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I hate these pain clinics. But, sometimes they do something right.
Attached is something from a person I sat next to a a pain seminar: She had been experiencing a lot of pain for many years.
What a nice surprise to hear from you.
I saw a lot of docs but not as many as most. Trying to think back...Primary care, PA, orthopedist, physiatrist, endocrinologist, podiatrist, physical therapists, orthopedic surgeon finally confirmed it after a bone scan showed my left leg already had remodeling in it, so that coupled with tht bone loss on x-rays and all the other absurd symptoms from the many months earlier clearly made it CRPS. But often it is largely invisible if you're not in an acute flare or early in diagnosis, and there are not tests that conclusively identify for it which makes it even harder to diagnose.
It's basically based on tha patients history, what they express and what the clinician sees during a 20 min visit when symptoms vary tremendously and typically progress throughout the day. So that's a tiny snapshot. Great, huh lol
Are you thinking that the different types of pain you've experienced might be CPRS?
The thing with CRPS is it doesn't feel like any other type of pain really, even added up and like you said, I've experienced quite a few different kinds unfortunately. You certainly have too. With CRPS it's not that necessarily that there's a lot of diff types of pain though definitely lots of diff categories of sensations, or all over, it's how unique it feels. How extreme and intense it is and what influences it symptoms. For ex. your bones feel like they are literally shattered, muscles tearing, bugs crawling over your skin, pins/needles, pulling sensations, deep, deep aching of the bone, extreme sensitivity of the skin where any fabric or stimulus like wind is excruciating. There is a burning sensation the more you use the affected limb(s). It feels like the body part is not your own, like it's an aliens, you sort of disassociate from it in a weird way the most you avoid using it too. And then over time it can spread, and the painful symptoms are fueled by the sympathetic state your nervous system gets stuck in. That's what fuels the swelling, pain etc.
Does and of that sound familiar or like things you've experienced over the course of time?
I know, another thing to think about!!! UGH!!!