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Profile picture for dgulovsen @dgulovsen

Hello, Thank you for the reply. I haven't spoken yet with my Pulmonologist. She ordered ct scan and then I had an appointment to see her in 6 weeks. But the scan was done the following week and so I have all of the imaging and reports and no one to discuss it with. I called and they got me in earlier but that isn't until Friday so 2 weeks of freaking out. This is why I reached out here. What worries me is the waiting until it grows to 1cm and then will might involve my lymph nodes. If it is contained, I'd like to have it removed before it could spread and becomes an entirely different animal to treat.

I would like my pulmonologist to give me a referral to Yale, since they are one of two places that perform robotic assisted bronchoscopies. But I believe the referral needs to come from a pcp not pulmonologist which is confusing. My pcp doesn't know anything because I have't talked to the pulmonologist yet.

I am hoping that the original scan which my pulmonologist said she could barely make out the ground glass might not be accurate and maybe it was larger to begin with rather than actively and quickly growing. I can say that I may but am not certain that I was raised in a home with asbestos popcorn ceilings.

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Replies to "Hello, Thank you for the reply. I haven't spoken yet with my Pulmonologist. She ordered ct..."

Oh @dgulovsen, Your frustration comes through in your writing, and I feel for you. Not knowing and not getting answers to our questions is so hard. I would recommend writing out your questions, so you don't forget anything during the appointment, and sometimes, making a list like that can help to not go over and over the list in our heads. Once it's on paper or in the notes app on my phone, it can stop swirling in around my brain. It's great that the office was able to move up the pulmonology appointment. Do they offer a waitlist in case there is a cancellation? Each step in the diagnosis process takes time. My lung cancer diagnosis took 2 months from my first abnormal x-ray to my first treatment, and I was symptomatic. Hoping that you are able to get the appointments and the referral that you're seeking. Hugs.