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Weakness won't go away

Polymyalgia Rheumatica (PMR) | Last Active: Sep 25 8:33am | Replies (25)

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Same here. About 3 months after tapering off of prednisone, gelling in my buttocks, thighs, and neck came back. But my arms and hands are normal. Getting up out of a chair is hard again, but once I get going I'm fine (gelling). The rheumy offered to put me back on 2 mg of prednisone, but I am resisting due to bone loss. I was hoping the change of seasons/ibuprofin/weight training would help, but nothing has changed. I'm going to give it a year of toughing it out. I am definitely better than before prednisone, but worse than being ON prednisone. Dilemma.

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Replies to "Same here. About 3 months after tapering off of prednisone, gelling in my buttocks, thighs, and..."

I feel your pain, sorry, bad joke.

I had to look up gelling, sounds right. This article said it is more common in folks with autoimmune issues.
https://www.osc-ortho.com/blog/what-is-the-gelling-effect-of-the-knee/

It amazes me how deep the pain is, and that stretching, weights, walking, nothing lessens the pain. I am trying a gluten free diet. On day 6, no improvement yet. Fingers crossed. I tapered to 8 mg. All great for 3 weeks. Then boom! Pain back. Back to 12.5 mg and starting the taper again.