I know this is now 2 years later. Did you apply for disability? I did in Feb 2022 and finally after 2 denials, I had a phone meeting with a judge plus I had a lawyer (25% or 6000max). I guess I passed because they gave me 100% disability. It was the best thing I could have asked for because I was receiving early retirement benefits (18 months before full retirement). I fought for the disability because the difference was about $400/month. If you filed for disability and haven'y received any compensation yet. Keep on fighting!!! Especially if you are the caregiver for a special needs child. You should be receiving something for that, I hope!!! Hope you are pain free or getting there!!!