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DiscussionHow to replace esomeprazole (Nexium) for epileptic son or take a rest?
Epilepsy & Seizures | Last Active: Sep 21 12:28pm | Replies (18)Comment receiving replies
Replies to "Does he not have a communication device to assist with any communication? Or are there other..."
His primary diagnosis is agyria lissencephaly with severe developmental delay, refractory epilepsy, and infantile cerebral palsy of unknown cause. Genetic tests came back negative, and there are no addictions; we don't smoke, use substances, or are alcoholics. The neurologist explained to us that he's one in a million; it just happens.
He's like a 5 month old baby, we understand him and he reacts like a baby when we talk to him... That's more than what doctors expected from him...I didn't mention it because I was trying to focus on the gastric problem. Not sure what devices you mentioned, I try to be updated but never heard of them for kids that don't speak.