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ariza9110 avatar

There is no hope: Life feels impossible to me

Autoimmune Diseases | Last Active: Oct 1 11:26pm | Replies (85)

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Profile picture for gynosaur42 @gynosaur42

What an incredibly inspiring message and story, @pm56 Thank you! It’s so easy to feel terribly alone when we suffer from chronically painful conditions, and when our healthcare system is limited in what it can offer us. @ariza9110, I am so glad you have posted to share how hopeless and helpless you have been feeling. I, too, am negatively impacted by mold and have run the gamut of attempts to regain health over decades. Many attempts to access healing have resulted in similar responses, either telling me there was no remedy/treatment or that this was in my head, or that I could fix it with some regimen that either cost more money than I could ever earn (and was not covered by insurance) or involved my taking umpteen vitamins or attending to my body’s needs every second of every day, to the point that earning a living or living a meaningful life was seemingly impossible. You are not alone in this!

@pm56, again, your story is hopeful and inspiring. Sometimes, the science process is achingly slow to address some of our struggles, but your story tells us that, at least some times, it catches up with us.

@ariza9110, I hope you will continue sharing here and will find at least some comfort in knowing that you are not alone with your experiences, and as with the article shared by John, you will find some information that you can take to your medical team and some language that you can use with them to keep helping them work toward providing you with the medical help and support that you need.

I will keep you in my thoughts and hope that a solution (or set of them) finds you very soon.

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Replies to "What an incredibly inspiring message and story, @pm56 Thank you! It’s so easy to feel terribly..."

@gynosaur42 that’s what I was trying to convey - sometimes it does seem hopeless but if you hang in there long enough, you’ll either get a diagnosis, find a drug that works, a device that can control, or something that can help. I have 4 MRI’s this week of the brain and spinal cord. Still hopeful 😊