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MAC & Bronchiectasis | Last Active: Feb 21 12:56pm | Replies (37)
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Replies to "Hello Spider. Have you had BE a long time? Mine is also considered severe. I have..."
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Hello Irene, I was first diagnosed with BE in March of 2021, the same day I was diagnosed with NSIP with fibrosis. Mine is considered “Traction Bronchiectasis” as the cause is from the pulmonary fibrosis. The mucus I expel is the total of all three sessions I do. And that total is always between 1/8 - 1/4 cup. I could probably get by with two sessions, am & pm but I normally do them every 6 hours or so time permitting if course. I have skipped the afternoon session at times, and have found my mucus becomes harder and seems thicker to cough up in the evening session. I use the same cup for my Bronchodilator morning and evening sessions for two consecutive days, and the same for the 7% saline, that cup is the LC Star. Now in my afternoon session I use my rescue inhaler two puffs, wait 15 minutes then do 7% in a LC plus cup, and doing intermittent Autogenic drainage. I find getting well hydrated before AND during my sessions really helps. I’m constantly sipping water with my 7% saline session each time. I usually consume 1/2 - 3/4 of a 16oz bottle each time. Mornings are much harder as the mucus has settled while sleeping, and I haven’t been able to hydrate as well. I also usually take 400mg of liquid Guaifenesin am & pm sessions, and find that that along with hydration really helps loosen the mucus especially in the morning. It’s called Geri-Tussin and I get on Amazon about $10.00 a bottle no Rx needed. I always wash my cups in the hot soapy water after the two days of use, and sterilize weekly. I have two sets of the same items in containers and that’s where they go after use. Hope this helps. Best wishes for better breathing. I also am currently on Brinsupri, and have been for 12 days, no noticeable improvement yet I’m sure to early, no noticeable side effects either though.