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Severe tortuosity and redundant colon

Digestive Health | Last Active: Aug 3 11:35am | Replies (150)

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I know it's been quite a while since you posted this, but I was wondering if you have any updates? Were you able to manage your symptoms better?

I'm 25F and dealing with the same thing. It's escalated over the past three months, and this week I haven't been able to get a meal down without vomiting afterwards. It's also accompanied by bad cramping and usually diarrhea. I had a colonoscopy about six months ago that revealed the redundant colon, but haven't successfully managed the symptoms and am so exhausted. I am also carrying puke bags everywhere I go, and just want to heal! I'd love to know if you were able to improve your symptoms 🙂

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Replies to "I know it's been quite a while since you posted this, but I was wondering if..."

First and foremost, I am so so incredibly sorry that you suffer from this too. It is such a debilitating thing to have to go through. Have you had endoscopy? If not, I would also ask for that as well with your GI Specialist to make sure you do not have anything going on causing you to vomit so near to having eaten. I know I have a hiatal hernia and malfunctioning Lower Esophageal Sphincter, so I have acid that leaks backwards.

I am currently reaching out to an office that specializes in Endometriosis. I have done a ton of research and found that you can have endometrial bowel disease. I had to have a full hysterectomy about 20 years ago due to severe endometriosis and one ovary removed. About 10 years later they had to remove the remaining ovary due to endometrial adhesions attaching it to the abdominal wall and intestine. They are finding endometriosis is an autoimmune disease and can be found all over the body including lungs and brain. I am wondering if this may be causing adhesions along my already redundant colon and this is what is happening. There is a physician that specializes in Endometrisis only I am trying to get an appointment there and see what they say.

Have you been diagnosed with Endometriosis? I also have lungs issues so I am trying to systematically go through everything to see if they all correlate. I will keep you posted. I am thinking of you. It is horrible to have this issue.

@sienamaria Yes, update~ amitizia has been terrific for me! Ohmygosh. For yrs it has seemed to me that my guts do not move so when I learned about medicines such as amitizia, I was astonished & immediately request that my doctor prescribe it. Such a game changer for me. Never give up, my Friends.