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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @kari33. What a strong little guy you live with! I am so glad you found Connect as you continue learning to help your son with epilepsy and cerebral Palsy.

@t98 has provided such a thoughtful option your doctor may think will help as well. I commented recently in another discussion with my experience, my doctor recommending famotidine as an option to protect my stomach from aspirin I need to take.
- Alternative to omeprazole discussion: https://connect.mayoclinic.org/comment/1392780/

You bring up a tremendous challenge because he cannot tell you how he is feeling. How are you doing with all of this, mom? When is his next doctors appointment?

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Replies to "Hi @kari33. What a strong little guy you live with! I am so glad you found..."

Famotidine is not as effective as esomeprazole to prevent bleeding ulcers that is why the Dr recommends it.

Hello @jharsh, thank you for answering! It's really exhausting trying to figure out what's going on because he has too many reasons to feel anxious, irritated or too sleepy ...I'm worried because I had NSAID gastropathy and I know how it hurts...even now, after 13 years I'm dealing with the side effects of taking Omeprazole for a year .We are waiting for a microbiome test results to add more information to the new blood tests. All this time I was blaming the antiepileptics for his side effects but now I've found out that Esomeprazole has more side effects that I didn't know about like having motility issues or low magnesium levels in the blood tests for no reason. So, we got a long list to accomplish: gastroenterologist, nutritionist and surgeon ( to replace the gastric. button). The nutritionist is doing an amazing job, because all of his meds interfere with his vitamins and minerals levels, so she gave us Vit D, a weekly dose of a Vit complex with extra iron and a Supplement with proteins and calcium to add to his meals.
I know that we can't resolve everything, but we keep insisting to improve as much as we can.