← Return to Meningioma: Anyone else? I'm frightened
DiscussionMeningioma: Anyone else? I'm frightened
Brain Tumor | Last Active: 7 hours ago | Replies (514)Comment receiving replies
Replies to "My neurologist and neuro oncologist tell me that my Mengioma is inoperable. Neurologist yesterday answered saying..."
My 2.7 centimeter meningioma was either sitting on my trigeminal nerve, or nearly so. (Another reason not to let doctors who are not neurosurgeons poo-poo your concerns about these meningiomas that "are almost always benign; we'll just monitor." Had mine been dealt with a year and a half earlier when I brought it to my P.C.P.'s attention (after it was found incidentally in the ER) maybe it would not have grown so close to my trigeminal nerve, or my optic nerve. The neuro doc at UCSF who saw me shortly before I was wheeled away into the operating suite specifically make a point to tell me that they were going to try very hard to scoop out the entire meningioma but that they would not in any way compromise my trigeminal nerve in the process; they would just go for partial resection if that were the case. So maybe your doctors are thinking the possible is impossible. In my situation, it was the same as yours, that being that both the neurologist and neuro oncologist told me mine was inoperable. I wouldn't settle for Joe-the-Blow neurosurgeon either to get your 3rd opinion. You are only 59, deserve the best care and outcome. Try to get into a university affiliated school where they keep up with the latest research and interventions, such as Mayo Clinic. There is no Mayo Clinic in Calif. I recommend UCSF for those that live here , or have access to a local airport with an easy non-stop flight from your city to San Francisco.
Good call