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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 30 minutes ago | Replies (6649)

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A number of MRIs, a Neurosurgeon as it was thought to be spine problems, he was the first to say neuropathy. He sent me to a Synapse Neurologist his test were NCS and EMG he agreed but could find nothing amiss, he then sent me to a Haemotologist with some suggestions re white blood cells and protein. He took I'm sure half my blood and also agreed with Neuropathy but also could not find what the cause was. So here I am a idiopathic. @wenner

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Replies to "A number of MRIs, a Neurosurgeon as it was thought to be spine problems, he was..."

My spine surgeon told me that if the surgery did not fix the issue that I should look into a Charcot-Marie-Tooth diagnosis. Even back then he thought it was CMT. My genetic testing thus far has not confirmed a CMT diagnosis, but I have many of the similar symptoms.