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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 hours ago | Replies (6643)

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Welcome @dwsouthwick, Looking for support and what helps is the very best thing we can do to help ourselves when they tell us there's no cure we just have to wait to see how it progresses. That's really what brought me to Connect back in 2016 after being diagnosed with idiopathic small fiber PN. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

If you haven't already seen the site and you want to learn more about Neuropathy, the Foundation for Peripheral Neuropathy is a great place to start learning more - https://www.foundationforpn.org/. They also have a YouTube channel where you can find their many webinars on different neuropathies and treatments - https://www.youtube.com/@foundationforperipheralneu4122.

@artemis1886 has mentioned having axonal sensorimotor polyperipherial neuropathy and may be able to share some experience with you. Have you done any research on complementary or alternative therapies for neuropathy?

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Replies to "Welcome @dwsouthwick, Looking for support and what helps is the very best thing we can do..."

I have not done anything for alternative therapies, other than ALA 600mg daily.
Oddly enough, I manage a Neurology clinic and have had minor conversations with my providers, however, their specialty is migraine headaches.