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DiscussionMeningioma: Anyone else? I'm frightened
Brain Tumor | Last Active: 6 hours ago | Replies (513)Comment receiving replies
Replies to "I had a meningioma removed at Mayo in 2007 when I was 63. They thought it..."
Your story is very encouraging! Meningioma Type II is actually a rare subtype - in between Meningioma Type I (benign) and Type III (aggressive). I have scouted the medical literature and found that there are no consensus how to treat it. Type II can behave both ways - like a benign or like an aggressive tumor depending on a lot of factors particularly tumor markers. Thus the WHO has been reclassifying this tumor type. I assume that since your diagnosis happened in 2007 the tumor tissue wasn’t analyzed for genetic mutations and the diagnosis was made due to mitotic activity. I have seen in the literature the adjuvant radiation approaches and the observation approach.
I am happy for you that you have chosen to abstain from radiation and that you had a good outcome.
I think one of the most difficult part of having a condition in a gray zone is to deal with the waiting time period for your next scan. You are waiting to learn how your tumor behaves - was it completely removed - is there any new growth? What do I do then?
It is a challenge not to let the thoughts about what’s going on with your head overtake your daily life and relationships. You can’t burden others who don’t have that problem but you might have the need to talk about your anxiety. I can imagine now what you have been going through. I am sorry that you didn’t have the support from your partner that you most badly needed at that time.
Wow! Your an inspiration and your ex is a jerk. You are very willed. I'm so happy to hear that your well now. I find it comforting when I hear success stories. I'm just starting this Journey