Meningioma: Anyone else? I'm frightened
I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.
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Mine was found through a MRI. Don't worry about getting one. The worst part is its very loud. You neecd ear plugs. They put something that looks like a basket over your face so they can center you in the machine and you don't move. The contrast in an IV. when it goes in you feel a warm flash through your body. and that's it. Piece of cake
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2 ReactionsYoung age? 🥹 I doubt they would do surgery at 79!
Given my headaches, this should probably have been investigated fully a year ago. Thanks for being in touch. Keep us posted and I will do the same.
Thanks for the info. Noise prevents me from going to the movies so I am anxious!
Ok. Its good to know someone who understands. And you are 79 years young
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1 ReactionThey give you earplugs. Maybe they might have headphones for music
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2 ReactionsThanks! Reduces my anxiety.
I had a meningioma removed at Mayo in 2007 when I was 63. They thought it would be benign but was a Who Grade 2. They wanted to do radiation as they thought it would grow back as cancer. I said no. It took me a few years to get "it together" but am now doing well. My EX husband was not supportive and left after a year when I still had difficulty walking and thinking well as my brain was still inflamed. But now I'm enjoying life much more. I was lucky as my meningioma was in my right frontal cortex and mostly effected my left side and balance rather than vision or memory.
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2 ReactionsWow! Your an inspiration and your ex is a jerk. You are very willed. I'm so happy to hear that your well now. I find it comforting when I hear success stories. I'm just starting this Journey
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1 ReactionThank you. You just gave me a lot of info. Best so far. My nerologist didn't seem to want to discus it. She kept trying to move on to finish the results of my MRI. I don't even no mine is located. My turmor is 7x5x5mm so no radiation for me. I'm 67, might be to old for surgery.
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1 ReactionOh, darn, just reread what I posted in response to your reply and a correction needs to be made. The last sentence regarding the window closing for radiation therapy. It should be the window closes somewhere between 3 and 4 Centimeters, not millimeters. I am sorry for this typo. I guess I forgot to proof read. So you are still a candidate for radiation. Also, you are 67 years young; I was 72 when I had a craniotomy to remove a large meningioma that was almost 3 centimeters. By the way, the neurologist I consulted with initially gave me wrong information and said my benign tumor was inoperable. So I encourage you to now consult with a neurosurgeon, especially given you feel as if the neurologist didn't really discuss your situation at length. It's your brain, after all, and deserve to have all the details and options discussed.
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