Hi HB—
I did get the SCS in Feb but it has been a major failure and health risk. Turns out my body is so sensitive to the stimulation that it shut down my digestive system top to bottom— gastroparesis—so had to shut it off. Then re-tuned to different frequencies and same result. My next step is removal— Mayo and Boston Scientific don’t think I’m serious but trust me, it’s gonna go.
I love my pump— have good flow set up, along with 5 boluses per day. Worked a schedule where I can get a bolus before getting up in the AM to stay ahead of the pain— has helped— dilaudid in the pump— almost 20 years now. Some talk of Morphine but it’s being left to my choice. The Arachnoiditis is progressive—I‘m Dealing with more pain now than a year ago. My mind doesn’t work in terms of would or might— like Yoda says there is no try, there is only do or don’t do. These are hard times, but I’m now past 80 and tomorrow’s another day. Be well my friend— Archie