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Same here, muscle strength but quickly fatigue and a lack of stamina. I have been off steroids for a year, but the fatigue lingers. My doctor told me to get used to it, that PMR is here to stay but rises and falls unpredictability. I toy with the urge to go back on Prednisone but am resisting it due to the negative side effects.
Replies to "Same here, muscle strength but quickly fatigue and a lack of stamina. I have been off..."
Same here. About 3 months after tapering off of prednisone, gelling in my buttocks, thighs, and neck came back. But my arms and hands are normal. Getting up out of a chair is hard again, but once I get going I'm fine (gelling). The rheumy offered to put me back on 2 mg of prednisone, but I am resisting due to bone loss. I was hoping the change of seasons/ibuprofin/weight training would help, but nothing has changed. I'm going to give it a year of toughing it out. I am definitely better than before prednisone, but worse than being ON prednisone. Dilemma.
@edwardh Identify with your comment. The weakness and stamina is a real issue with me and doctors don't seem to acknowledge it. Off prednisone for 6 months and don't want the side effects of it again but am so tempted. The extreme weariness has so altered my life and depression goes along with it.
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I feel the same, as soon as I can taper off the prednisone I want to remain off of it if at all possible.