Welcome to the NETs Group! Come say hi.

Posted by Teresa, Volunteer Mentor @hopeful33250, Jan 20, 2017

Hello and welcome
Let's pull up our chairs in a circle and check in with each other and talk about how we are doing with our NET diagnosis. Any new tests, meds or treatments going on for you? What about your symptom control? Any concerns you have?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Jan 30 4:04pm

Upcoming virtual support group for all NET patients:
Support Group Meeting
Thursday, February 6, 2025, from 5:30 pm-7:00 pm EST
With Guest Speaker:

Dr. Heidi Connolly, Mayo Clinic Cardiologist
Presenting on Carcinoid Heart Disease
Location: Virtual (Zoom)

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW
Oncology Social Work, Section of Social Work
Phone: 904-953-7266; Fax: 507-422-0920
Email: Grossling.loriell@mayo.edu

lagunagrl | @lagunagrl | Feb 10 1:48pm

This post is from 2017. Anything more recent from you? Thanks.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 10 5:41pm

In reply to @lagunagrl "This post is from 2017. Anything more recent from you? Thanks." + (show)

Hello @lagunagrl
If you want to see the most recent posts, here is how to do it. If you look underneath the first post (in any discussion) you will see an icon that says,"Oldest to Newest," If you click on the drop-down arrow you can change it to "Newest to Oldest" That way you will have the most current posts.

Also, if there is someone you want to respond to you need to click on "Reply" and then post or use their user name (as I did in this post where I typed @lagunagrl). Always using the "@" before the name.

I hope this helps.

dragonfly214 | @dragonfly214 | Sep 16 2:21am

Hi. Only found out about a neuroendocrine tumor in my lung lingula three weeks ago. Been reading scholarly peer reviewed research articles. Just stumbled across this group. Thank you for reading.

Teresa, Volunteer Mentor | @hopeful33250 | Sep 16 3:37am

In reply to @dragonfly214 "Hi. Only found out about a neuroendocrine tumor in my lung lingula three weeks ago. Been..." + (show)

Hello @dragonfly214 and welcome to Mayo Connect. I understand from your post that this is a new diagnosis for you. We have numerous discussion groups on Connect with members who have lung NETs. You can find more of these discussions by using the search bar at the top of your screen and searching for "lung NETs." One of those members you will meet is @californiazebra, who has been treated for lung NETs for many years.

Were you having symptoms that led to this diagnosis? Has a treatment plan been suggested by your oncology team at this time?