Wow I sure understand bladder spasms! I don’t even feel a need to go, then all the sudden that strong feeling of “sort of pain” and then look out….here comes the rush (gush!). It’s so frustrating. I just have to wait it out and hope I don’t overflow my pad. I’ve gotten to where I don’t even want to go anywhere for fear I’ll have an accident. Like you, I have none, zero control. It just comes out like a faucet and I just have to wait it out.
The oral meds didn’t work and I finally got so tired of this I tried the Botox injections. I had been leery because of the possible (rare but serious) side effects. Kept worrying I’d become paralyzed Lol. I had the procedure. My urologist did it in the clinic. It wasn’t bad at all. If you’ve had a cystoscopy you know there’s a bit of discomfort. The only other was each time he injected, I felt a pinch. He did 5 injections. Only took 5-6 minutes after all the prep. I started noticing the difference within 3 days! It was glorious!! I felt SO free of that constant fear. I still wore a pad but rarely had any issues. The downside is as that it started wearing off after 2 months. There was still some effect for another 1.5 months but then (and now) I’m back where I started. Again, I’ve gotten so tired of it that I’m having it done again this week. I was hesitant but it’s been 6 months at this point so I’m not as concerned about side effects or risks. The urologist said it’s fine to get another treatment every 12 weeks but it kind of scared me that close together. So I would highly recommend it if you’ve tried the oral meds with no relief. I’m interested in your progress and anyone else out there who have had any experience (good and bad) with Botox. All the best to you @princessbunny!