I totally agree with you! I was diagnosed just this year and when I did my initial research, everything was so scary, I actually didn’t sleep very well for weeks!! All I kept thinking of was that I was going to die if I fell! I nearly gave up golf because I’m not supposed to twist or bend according to many articles I read!! Luckily, I mentioned it to my chiropractor who had me get tested for Vit D (I was deficient) and he also told me to continue playing golf because my body/and muscles are used to it!!
Of course now that I have educated myself, my outlook is better; I am healthy (no underlying symptoms), I don’t take any medications for anything, I play golf, I walk at least 45 minutes each day and I started to lift more weights based on the LiftMOOR trials (under PT supervision).
I sometimes think that if a celebrity or major influencer has this disease, it would be front and foremost as far as research is concerned. And also because it is an “old person” disease, we are told to just take medication. My PCP didn’t even talk to me about my diet!! Or exercise!! He just wanted to put me on Fosamax!! My endocrinologist, once we ruled out underlying factors, wants to give me ReClast even though my CTX numbers are in the 400s.
I am tired of big pharma and doctors who are focused only on prescribing meds. Thankfully, there are some great podcasts out there than are informative and give me hope.
Have a listen to one I just listened to by Dr Sheri Betz. She talks mostly about reading the DEXA, but towards the end she talks about vertebral fractures and how they are not a death sentence.
https://www.strongbonesstarthere.com/bone-coach-understand-your-bone-density-scan-dxa-results