← Return to Biopsy showed DIPNECH
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Neuroendocrine Tumors (NETs) | Last Active: Sep 23 10:46am | Replies (17)
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@kdubbs
DIPNECH sounds much scarier than it is. Sloooowww growing. You’ll be around for a long long lonnnnngggg time. Even if it turns into lung NETs they will likely be slow growing typical carcinoids like I have. We’ll grow old together. I’ve had all this for decades. I had the DOTATATE Ga68 PET scan and it turns out I don’t have the somatastatin receptors needed for NETs to show up on that scan so no more DOTATATE scans for me. But Octreotide still works to calm my DIPNECH cough and other issues. You’ll do great!