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PARKINSONS, NEUROPATHY AND TRIGMINAL NEUROLOGIA
Neuropathy | Last Active: Oct 2, 2025 | Replies (12)Comment receiving replies
I have been diagnosed with sjogrens, trigeminal nueralgia, nueropathy with severe numbness on my entire face, and recently with myositis. I did a year of rituximab infusions but didn’t help with nueropathy
Or numbness. Currently been taking ivig infusions for last 5 months. Improvement with myositis but not numbness or nueropathy which doctor was hopeful it would help with that.
Replies to "I have been diagnosed with sjogrens, trigeminal nueralgia, nueropathy with severe numbness on my entire face,..."
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I am so sorry. I don’t know how you manage it. Learning triggers for Trigeminal nerve pain helped. For example, avoid touching my nose, sleep with my face covered to avoid a draft on my face help me to avoid pain.