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PARKINSONS, NEUROPATHY AND TRIGMINAL NEUROLOGIA

Neuropathy | Last Active: Oct 2 3:02pm | Replies (12)
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I have been diagnosed with sjogrens, trigeminal nueralgia, nueropathy with severe numbness on my entire face, and recently with myositis. I did a year of rituximab infusions but didn’t help with nueropathy
Or numbness. Currently been taking ivig infusions for last 5 months. Improvement with myositis but not numbness or nueropathy which doctor was hopeful it would help with that.

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Replies to "I have been diagnosed with sjogrens, trigeminal nueralgia, nueropathy with severe numbness on my entire face,..."
smueller19 | @smueller19 | Sep 15 9:38pm

I am so sorry. I don’t know how you manage it. Learning triggers for Trigeminal nerve pain helped. For example, avoid touching my nose, sleep with my face covered to avoid a draft on my face help me to avoid pain.

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