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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 2 3:09pm | Replies (781)
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Profile picture for anitasharma @anitasharma

Hello friends and @katgob and @loribmt
How are you guys doing ??? Chilling buzzing making more Plans or just relaxing with more Dreams .
Well Hoping a good Summer for everyone .
Stay Healthy and Happy , Give Hope to everyone facing challenges and fear for the BMT Journey.
My Husband staying at home spending a quality time with their Parents and Children and Yes Off course me His only Sexy Wife ..Lol
So , He has completed almost 6 Months Post Bone Marrow Transplant (Acute Lymphoblastic Leukemia) with few Side Effects like Appetite Issues ,Itching ,Dry Eyes Sometimes and Constipation . One thing I must Say He is Dealing all this with smile and Prayers .
Can Somebody please let me know more about GVHD Chronic as what to be avoided for at least a Year after the Transplant Specially for the Skin .???What is best Sunscreen or Lotion because he complains more about dry and Itchy skin ????
This will be a great Help!
I would also like to say Happy Birthday @katgob !
I know I am late but wishes and blessings never got fade. Congratulations on your 500 day post transplant milestone too . It gives more Positivity to others ..Chearssss
Last but not the least fight for your happiness and Enjoy each Day !
Take Care ..keep Smiling !

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Replies to "Hello friends and @katgob and @loribmt How are you guys doing ??? Chilling buzzing making more..."
deb913 | @deb913 | Sep 16 9:03am

Hi Anita,
Itching was a huge issue for me and I stayed out of sun from about 9-5. But at 10 months post transplant my itching is almost gone so there will be an end to it 😀

Here are some tips and products that helped me. They’re available anywhere but I just happened to buy on Amazon.

- Beach spf - I could use any brand but was 9 months post transplant - use 50-100
- Had to stay out of sun under umbrella or shade from 9:00 -4

- Finished daily walks by 8:30/9am because any heat or perspiration made skin itch

- SPF/UPF clothing and hats help a lot because sunscreen is in the material

Soaps
- Hand soap: ATTITUDE Liquid Hand Soap,

- Body wash soap: Dove Body Wash with Pump Sensitive Skin

- Face cleaner : Vanicream Gentle Facial Cleanser

Lotions
- Everyday lotion not spf, not anti itch: Gold Bond Healing Sensitive Daily Body & Face Lotion for Dry, Sensitive Skin,

- Face lotion not SPF: CeraVe PM Facial Moisturizing Lotion, Night Cream with Hyaluronic Acid and Niacinamide, Ultra-Lightweight, Oil-Free Moisturizer

- Face daily SPF not waterproof for beach: Haruharu Wonder Black Rice Moisture Airyfit Daily Sunscreen 1.69fl.oz

- Daily lotion with spf sunscreen - not sticky - not waterproof for beach: Eucerin Daily Hydration Broad Spectrum SPF 30 Sunscreen Body Cream for Dry Skin, Fragrance Free Sunscreen Moisturizer, 8 Oz Tube

- Anti itch lotion (same active ingredient as Sarna lotion) CeraVe Anti Itch Moisturizing Lotion with Pramoxine Hydrochloride,

Hope this helps. It does get better.

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