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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @pnelson5220 and welcome! I appreciate you sharing about your NETs journey. The discovery and treatment of NETs are different for each NET patient.

I look forward to getting to know you better and hearing more about your experience. It appears, from your post, that the only treatment you have received is surgery. Is my understanding correct? Was this surgery of the small intestine? Has any treatment been suggested for the liver?

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Replies to "Hello @pnelson5220 and welcome! I appreciate you sharing about your NETs journey. The discovery and treatment..."

Indeed nearly a meter of my small intestine was removed, along with a mass of lymph nodes that were sitting on/near the small intestine (roughly 90 tumors - 1/2 registering positive), then about 1/4 of my liver - taken in 5 slices and one ablation.