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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 1 day ago | Replies (7418)
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Profile picture for wenner @wenner

I have stage 3 of Periphial Neuropathy, The oh!!! so painful part. I have had every test under the sun and still there has been no answer to what has caused this. Specialist that have run the tests have been a Nuerologist, who then sent me to Synapse Nuerology who sent me to a Haemotologist. He has not sent me on, just no results from him. What do I do now, one needs to know what is causing such a life style as I am in now, wenner

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Replies to "I have stage 3 of Periphial Neuropathy, The oh!!! so painful part. I have had every..."
mrmacabre | @mrmacabre | Sep 15 1:49pm

A lot of us here don't know the cause of our neuropathy either, so they call it "idiopathic", which means they have no answers for us, other than just deal with it. Even if a cause can be determined, once the nerves have been damaged, there's no treatment or cure, we're stuck with it for the rest of our lives.
My lifestyle has taken a 180 degree turn for the worse, and it's been 10 years of dealing with this crap now. I've seen 4 neurologists and had every test available done, sometimes on multiple occasions, and the results are always the same, no underlying cause can be found.
Sometimes we're just screwed by life.

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SusanEllen66 | @SusanEllen66 | Sep 17 12:20am

@wenner I’m so sorry to hear you have neuropathy.

I do too. Polyneuropathy is just annoying for me.
I never heard of Grades for neuropathy.

There is no cure for neuropathy. I suspect that if you have it, the nerves are damaged already so there is nothing anyone can do now. Maybe that’s why the doctors basically brushed you off.

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