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Looking ahead after Tymlos: Reclast, Evenity or HRT?
Osteoporosis & Bone Health | Last Active: Jun 8 10:19pm | Replies (114)Comment receiving replies
@drsuefowler My REMS right femur hip T score result was -2.3 in February, 2025, up from -2.6 10 months previous. So .4 increase in spine and .3 increase in hip. I did ask the naturopath about a P1NP. She said we could if I wished, or consider this test if my next CTX numbers are up from 138. I said it makes sense to hold off. I live near the Washington State border and would have to drive to Bellingham an hour away and pay of course. It isn't offered where I live in Canada. It is interesting to compare notes with your DEXA, TBS and REMS results. Interesting that your DEXA showed improvement while the REMS showed none. What was your percentage of improvement on the DEXA? Many people report a better score with REMS. My REMS was done 6 months after my shocking spine DEXA T score of -3.5 in November of 2023. The REMS showed -3, in April of 2024, so not wildly different. I hadn't started BHRT before my first REMS but had been taking Keith McCormick's recommended supplements for 6 months. A word of caution about DEXAS you may be aware of is that the machine must be exactly the same. My DEXA spine t-score in 2019 was -2.8. One year later after heavy long-term doses of Prednisone for my autoimmune diagnosis, my DEXA spine t-score had improved to -2.4! I knew next to nothing about OP and DEXAs at the time and hadn't heard of Keith McCormick. Another Mayo connect member observed last year that the serial number was different on the two DEXA scans at the same hospital. My family doctor should have questioned this increase while on Prednisone but happily informed me my BMD had improved while the opposite what's happening! So it was especially shocking to receive my -3.5 result 3 years later. I am waiting to have a DEXA with a TBS at Vancouver hospital, anxious to see my trabecular bone quality score. That is great you have had gains on Tymlos and Forteo and that you will be seeing a N.A. Menopause Society physician. I am so glad I learned about this qualification. Thanks for sharing your experience and helpful information. All the best to you.
Replies to "@drsuefowler My REMS right femur hip T score result was -2.3 in February, 2025, up from..."
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@debbie1956, Your hip change is really good considering that it happened in only 10 months time! Just like your spine change! My last DEXA was on a new machine. I changed to a different company to get a TBS and better service, so they did not figure out percentage increase. My spine went from -2.2 in May, 2024 to -1.2 in May, 2025. My right femoral neck went from -2.7 to -2.2, and my left femoral neck went from -2.3 to -1.6. My TBS score was 1.370. Anything over 1.31 is considered normal microarchitecture. I don't know why my REMS scores are so different. I wonder if the pharmacist who did them did them accurately or if the machine wasn't calibrated. My doctors go by the DEXA. Of course, with DEXA arthritis or positioning can influence results. At least the technician measured and tried hard to make this last DEXA accurate. My previous DEXA technicians didn't even measure or try to position me, just rushed me through.
I am so glad that you previously mentioned the NA Menopause Physicians. I already had a list, but had failed to contact one of them. I am working on getting an appointment now. Thanks for sharing your wonderful results. It is so encouraging!