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Has anyone gone off hormone therapy (ADT) after radiation?
Prostate Cancer | Last Active: Sep 26 12:17pm | Replies (100)Comment receiving replies
Hey Jim,
I have also been on Orgovyx for 9 months. For a few months the side effects were mild. However, they have become severe especially the hot flashes. I’m 76 years old and don’t drink alcohol, smoke or eat poorly. I exercise for at least an hour every day…walking, biking and resistance training. Lately it has become a struggle to get through a workout. On my daily walk I find it difficult to complete a mile without getting severe hot flashes. I actually have short blackouts when I sit to try and recover. The hot flashes drain my energy and I end up sleeping a lot. I rarely get a solid night’s sleep without multiple hot flashes. Yes. I have tried most every recommended solution but nothing seems to work. I refuse to add another drug to fight the side effects of Orgovyx. I realize every one is different and reacts differently. I stopped taking Orgovyx six days ago and feel better already. On Monday I’m telling my Urologist I’m done taking it. I’m sure he will not be happy. I will monitor my PSA and testosterone levels and see what happens. After looking at the research on ADT and prostate cancer I’m not convinced that two years of testosterone lowering drugs is the answer. Quality of life is my concern. At 76 I would rather have a few good years than go through this process without any guarantees of reoccurring prostate cancel. Thanks for your comment.
Replies to "Hey Jim, I have also been on Orgovyx for 9 months. For a few months the..."
I had severe hot flashes when I first went on Lupron. My oncologist prescribed a depo-provera Shot and the hot flashes almost completely disappeared, until I went on Zytiga. I took Depo-provera For six years and it did control the hottest hot flashes After 6+ years on Lupron I switched to orgovyx. The hot flashes actually stopped for five months and then came back. I decided that after eight years on ADT my testosterone would not come back and my oncologist agreed that I could stop taking it. Unfortunately, my testosterone came back quickly, and I had to start back up on Orgovyx. About six weeks ago, I went and got another depo-provera shot And now I’m getting a very few hot flashes and when I get them, I just get a little warm.
I have an embrlabs.com wave product (wave 2). I’ve used it for Over four years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough.
https://embrlabs.com/
Along with the depo-provera shot hot flashes really are a minimal issue right now.
You can continue ADT with depo-provera shots Every three months.
If you are taking Prilosec, you need to make sure that the Orgovyx pill is taken at least six hours before or after the Prilosec pill. If you don’t do that, the hot flashes are much stronger.
I was doing almost 90 min of exercise daily, and am now splitting it into 40 min “A-B” days with cardio MWF and stretching/walking/balance TTH. I’ve only done this a few weeks but it seems to be leaving a little more energy for the rest of the day. I plan to take Orgovyx for at least one year, hoping to be allowed to change to Nubeqa for six months and then take a holiday. At 74, I don’t think I can tolerate two years either and life afterward be worth continuing. Wishing you the best.
I empathize with you. Quality of life, often, seems to be kicked to the side of the road.
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I was on Lupron for 3 years, Enzalutimide for one year (the cost went from $0 to $1,600 a month so I was on Abiraterone for two years ($2.50 a month)