I’m sorry to hear all this! You sound like you’ve tried! As much as you probably don’t want to hear this. I think you need to get some new doctors or second opinions.
I have the same, but I found pain relief in exercise. There was nothing left to try! So while I am writing this, I am sitting on my stationary bike which sat unused for three years until this past spring when I was without Hope and frustrated. I take low-dose opioid for 25 years. It allows me to walk the dog twice a day and do intermittent activities. I’ve had many joint replacement surgeries. But this Springs, low level nerve pain along my leg outside of my knee outside of my shin down under my toes on top of my foot kind of threw me over. I got really angry and I got on that bike and I rode! Exhausted myself and for the first night in nine months, I slept… WELL. I have now tried to make it a religion to ride my stationary bike, an exhaust those crazy nerves. My nerves are permanently damaged from a nerve surgeon, not wanting to do surgery in time so they were crushed beyond repair. My lumbar surgery was 100% successful however it did not resolve the areas around the fusion which now need to be attended to at some point with another surgery. In the meantime, I’ve had six or seven years since the lumbar surgery and the nerve pain in my shin and foot have gotten worse. however, I never give up Hope really and I found I was borderline insulin resistant and I demanded the doctor put me on a medicine. I was put on metformin and it’s all pretty new, but I definitely think the insulin resistance has been causing a myriad of problems with my body not functioning properly. now that my body is working better along with being put on allopurinol for gout arthritis, which was misdiagnosed for 25 years as well I am doing much better. I am trying not to get anxiety ridden about the leg and nerve pain. The low-dose opioid works sufficiently in my case and as long as I continue my exercises(to (which I am now adding resistance light weights). I know how bad that nerve pain can be and how exhausted you get when you don’t sleep. All I can say is keep plugging away. Also, I want to recommend that you see a doctor about periodic facet joint (along the spine ) injections with corticosteroid that seems to relieve my nerve pain in my leg and foot. Inquire from your doctor if that is an option for you it is only a temporary fix as the Cortizone wears off. Ablation‘s work great and I love them but insurance is reducing their availability. Try to exhaust yourself during the day so that you sleep well at night. Sleeping deeper Makes you more optimistic and lessons the pain. It’s hard because we are more sensitive at night and our pain is exaggerated. Good luck.