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Profile picture for zippitydoda @zippitydoda

Thank you @roch, @jlharsh and @bajjerfan for responding to my post. This is my first time posting and responding so I hope I'm doing it right.
As anyone who has been referred to Mayo Clinic in Rochester, I'm in a state of flux and high anxiety and have a million questions. I hope to make a phone call to them tomorrow to get the status of my referral and I'm trying to make a note of what I need to ask when I do.
To @jlharsh regarding what led me to be referred, I can give a brief summary and don't mind the question at all. I have a temperature disorder/disturbance that my body responds to in overheating, cold shivers, sometimes simultaneously. What started out as annoying and discomfort two years ago has gradually become debilitating and affects my daily life. Have been to every specialty and have had nerve studies, muscle studies, vascular studies, MRIs, CT scans and can find no answers. My Neurologist finally made the referral to Mayo.
Thank you all so much. I appreciate the feedback.

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Replies to "Thank you @roch, @jlharsh and @bajjerfan for responding to my post. This is my first time..."

Geez @zippitydoda, how you have been struggling with temperature regulation has to be frustrating. Thank you for describing what you have been dealing with.Mayo Clinic sounds like a good place to help you tie all your symptoms and the testing you’ve done together. I am hopeful progress will be soon. Keep pushing!

You mention that once was annoying and discomfort has progressed to affecting your daily life. I absolutely feel your pain! I found myself in a systemic circulation crisis a few years ago, and when I wasn’t getting better I ended up at Mayo Clinic. They have been addressing one symptom at a time and I continue making progress.

What is your toughest daily struggle, or disappointment with not doing? Have you had a chance to check in to find out the status of your Mayo Clinic referal?